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National Health Service History

Geoffrey Rivett

home   inheritance1948-19571958-19671968-1977 1978-1987 1988-1997

1998-2007 2008-2017envoi short history London's hospitals

1998-2007  Labour's Decade

Professions and Providers.

Quick links to the sections of this page

Introduction   (includes changes in society, new patterns in the NHS and information technology)

Medical Progress

General Practice and primary health care

Hospital Services

Medical education and staffing

Nursing

Chronology:

Background

Year

NHS Events 

Kyoto Protocol (December 1997)
Digital TV
FTSE reaches 6000

Human Rights Act

1998

Green Paper – A First Class Service
The Bristol cardiac surgery case

Information for health
strategy
NHS Direct
Independent Inquiry into Inequalities in Health
da Vinci robotic equipment (USA)

Introduction of the Euro/fixed exchange rates
First elections for Scottish Parliament and Welsh Assembly;
Irish power sharing agreement.
NATO action in Kosovo & Serbia
Indictment of Clinton
Paddington train disaster
Disruption in East Timor

1999

NICE
Nurse shortage; substantial pay award.
Royal Commission on Long-Term care of the Elderly
White Paper Saving Lives: Our Healthier Nation  
Abolition of fundholding
Establishment of Primary Care Groups/Trusts Clinical performance data on English hospitals
Alan Milburn Secretary of State

Millennium & Dome/London Eye
Queen Mother 100 
Fuel tax protests
Hatfield train crash/rail chaos as major repairs are undertaken
Israel/Palestine intifadah
Collapse of dot.com/tech shares

 

2000

Shipman serial murders  
Phillips Report into BSE
White Paper -
The NHS Plan:

NHS Walk-in Centres

Abolition of NHS Executive, with incorporation of its functions in Department of Health

White Paper - Reforming the Mental Health Act

NHS/private sector concordat

Commission for Health Improvement

Bush US President/US recession
Foot and mouth
epidemic

Labour landslide election victory
Globalisation riots

9-11:Terrorist attack on World Trade Center Towers & Pentagon
Afghanistan conflict
Financial collapse of Railtrack
iPOD launched

 

2001

Organ retention report
Health and Social Care Act (2001)
Kennedy Report on Bristol cardiac surgery

White Paper -
Shifting the Balance of Power and introduction of legislation
Hospital "star" system of league tables
Wanless preliminary report on NHS finance

Euro legal tender in 12 countries
Death of Queen Mother
Government proposes regional assemblies
Stock market falls, pensions concern and corporate accounting fraud

 

2002

National Health Service Reform and Health Care Professions Act 2002.
Establishment of Nursing and Midwifery Council
Devolution day: four Regional Directorates of Health and Social Care, 28 SHAs replace health authorities and PCTs established
PCTs take over commissioning
April budget announces major funding increase & Wanless Review
NHS foundation trusts proposed

War with Iraq
London congestion charge.
Picture messaging

2003

John Reid Secretary of State for Health.
Tobacco advertising banned
GPs and consultants accept new contract.

Health and Social Care (Community Standards) Act
Agenda for Change
pay system launched
Building on the Best
(patient choice)

10 further nations join European Union
Asian tsunami disaster

2004

Financial flows - payment by results
First wave foundation trusts
NHS Improvement Plan
Choosing Health -
Public Health White Paper
Healthcare Commission
Modernising Medical Careers (reform of SHO grade)

Third Labour administration
London terrorist bombings
New Orleans Katrina Flood
Pakistan earthquake

2005

Creating a Patient-led NHS
Payment by Results starts
Further expansion of nurse and pharmacist prescribing
Patricia Hewitt SOS

Israel/Hezbollah conflict
Stern Report on the economics of global warming
W2.0 - YouTube

2006

Hospital star/league tables abolished
Our Health, Our Care, Our Say - Community Care
Better Research for Better Health
SHAs reduced to 10, PCTs reduced 152
PM speaks on personal responsibility for health
Plans for "super-unit" A & Es

Bulgaria & Romania join EC
Gordon Brown Prime Minister
Bali meeting on Climate change
Northern Rock bank collapse - sub prime mortgage crisis

2007

Alan Johnson SOS
Smoking in public places banned
Framework for Action (Lord Darzi)
Annual rise in NHS funding falls to 4% from 7.2%

Burma cyclone/Chinese Earthquake2008Regional (Darzi) reviews
Final Darzi Review Report , High Quality Care for All



Labour's Decade - 1998 - 2007

"When the NHS celebrated its 50th anniversary with much pomp, commemorative stamps, and a service in Westminster Abbey, a new Labour government was busy reversing many of the policies of its Conservative predecessor. The internal market was abolished, as was general practitioner fundholding. The NHS would indeed be modernised, but it would be on the basis of cooperation not competition.

Who then—in the euphoria of the celebrations when Frank Dobson, the secretary of state for health, could claim that "the NHS remains the envy of the world"—would have anticipated that within a couple of years policy would go into reverse gear? Who then would have predicted the emergence of a new model for the NHS based on choice, competition, payment by results, and a plurality of providers, let alone the emergence of institutions like foundation trusts?"  Rudolf Klein

Editorial, British Medical Journal, 5 July 2008  BMJ 2008;337:a549

Changes in British SocietyThe private sector and the NHS
The NHS and LabourEthics and patient participation
Towards a new model of NHSInternet
 NHS information systems

Changes in British Society

In general the economy was sound.  The UK, like many other countries experienced terrorism, often fuelled by radical Islamic influences.  The devastation in New York 9/11, atrocities in Spain and the London Underground, and the Iraq war cast long shadows. Following the Kyoto Protocol in 1997, climate change and carbon emissions became a national and international issue affecting policies on energy and transportation and a further hesitant step forward was taken in Bali in 2007. Globalization, the pressures of the European Community, and the digital revolution were also driving change. The introduction of the Euro in 1999 fuelled the national debate on our place in Europe and a European constitution that ebbed and flowed throughout the decade. To bring Britain in line with the Community ambulances changed colour from white to an eye catching yellow. 

Population movement increased. First London and then the whole country experienced an influx from the European Union.  Early in the decade tens of thousands of young French arrived.  Even before the EC expanded eastwards many workers from Eastern Europe and especially Poland arrived, filling jobs that the indigenous population did not want and creating new businesses. Local authorities complained of the pressure on their services from a substantial increase in the local population.  Retired English travelled to France and Spain for the quality of life. Emigration from the UK increased steadily to nearly 200,000 in 2006. Public reaction to economic migration and asylum seekers changed the political landscape throughout Europe. In 2004 the Department of Health issued an emergency multilingual phrase book, covering 60 common medical questions, produced by the British Red Cross Society  translated into 36 languages. 

Some migrants came from areas with a high prevalence of AIDS, tuberculosis and hepatitis B.   While Bevan had explicitly accepted that the NHS should be available to everyone, resident or visitor, government now took the view that it was not intended to be available free of charge to those who did not live in the UK. Government repetitively proposed to tighten regulations.  Front line staff had little time or inclination to ask their patients too many questions.

["How do we distinguish a visitor from anybody else? Are British citizens to carry means of identification everywhere to prove that they are not visitors? For if the sheep are to be separated from the goats both must be classified. What began as an attempt to keep the Health Service for ourselves would end by being a nuisance to everybody. Happily, this is one of those occasions when generosity and convenience march " (In Place of Fear, Bevan, 1952)]

The World Health Organization's twenty-year plan to bring ‘health care to all’ failed.  Famine, flood, civil war and genocide offset the efforts of aid agencies.   More than 2 billion people had no basic sanitation. The European Region’s Health for All, equally ambitious, was also far from fulfilment. (Moore W. The impossible dream. Health Service Journal 2000: 6 January: 8-9.)  The campaign for the reduction of third world debt made only limited progress, and poverty, famine, wars and the AIDS crisis seemed worse day by day. 

Within England the north/south divide seemed to be increasing.  The need jobs to commit 24 hours a day 7 days a week to one's employer stressed some.  In the countryside, crises hit agriculture (BSE, foot and mouth disease) and the provision of rural services became a major political issue.  Within the urban areas our multi-ethnic society was increasingly apparent.   Racially motivated riots (Oldham), protests against a global economy and violence in the streets, sometimes black on black and even against NHS staff, soured the atmosphere. The fashion for body-piercing and cropped tops changed the townscape while pressure led to the establishment of  smoke free public places and offices. To the profit of pharmacies, a gullible public spent increasingly on ineffective "alternative" medicines, while a split in the anti-vivisection movement led to the use of violence and terror tactics. For the young, adventure holidays and gap years proliferated, with a rising use of recreational drugs and clubbing. Institutional and financial malpractice, threats to the pension schemes and banks (Northern Rock) created anxiety.

Major constitutional reform, changes to the House of Lords and devolution to a Scottish Parliament and a Welsh Assembly were soon under way; health was the biggest single issue to be handled by the devolved assemblies.  The longstanding differences between NHS services in the four countries increased.   In 1998 Labour devolved power to an elected Parliament in Scotland, an elected assembly in Wales and an elected assembly in Northern Ireland. Four different health services emerged.  In England there was an accent on improving performance and setting targets, in Scotland a professionally led integrated system based on clinical networks, in Wales, partnership between the NHS and local authorities.  Both in Scotland and Wales benefits were provided benefits that were not available in England, for example in the care for the elderly, drug availability and in prescription costs.  The differences in funding, under the Barnett formula were apparent. 

Public spending as  2007-2008  (source The Sunday Times 9 March 2008)
 % of GDP,total expenditure per head
England41.1£7,121
Scotland50.3£8,623
Wales57.4£8,139
Northern Ireland62.7£9,385

While within each country formulas guided allocations to improve equity, no such policy has ever been applied between the counties.  Scottish spending approached the European average; English did not.  For wider purposes Government established nine regional offices.  The Department of Health was one of the sponsoring organisations of the government regional offices and NHS structure came to be was organised with their boundaries in mind. 

Source : Government web site

The NHS and the Labour Government

Throughout the sixth decade of the NHS Labour was in power yet the private sector was involved in NHS provision as never before.  In 1998 long waiting times for outpatient and inpatient treatment were major issues.  Ten years later this was replaced by the perception that there was poor access to the family doctor service and hospital infection was out of control. In basic research the early steps in nanotechnology, stem cell research and developments in genetic medicine were taking place and supplemented rapid advance in pharmaceuticals and the technology of imaging.  Patient expectations continued to rise and media coverage of health affairs to increase.  Each expensive new technology not only raised costs but increased demand as treatment became more effective and less traumatic.  Government faced the dilemma of reconciling national standards, for reasons of parliamentary accountability, with a perceived need to decentralise decision making.  Slowly at first, and then increasingly rapidly, Labour attempted to deal with the obvious and major defects of the NHS, too few doctors and nurses, poor buildings, and waiting lists that would be unacceptable in other major western nation. 

Staffing

To improve the capacity of the NHS there was an increase in the number of places in nursing and medical schools.  Indeed the staffing of the NHS in England grew in virtually all categories during the decade, as the growth rate of the NHS was increased, though falling slightly in 2006 and 2007. There were 1.3 million NHS staff in 2007, just over 50% being doctors (128,200) or qualified nurses (399,600)  New careers emerged as the idea of "modernisation" stimulated the development of new roles. After years of negotiation, a new pattern of pay system, the Agenda for Change was introduced for all directly employed NHS staff, except very senior managers and those covered by the Doctors’ and Dentists’ Pay Review Body, to harmonize the conditions of service staff, provide a clearer system of rewards for staff working flexibly and assist in the development of new types of job. Rapid increase in the demand on ambulance services encouraged development in the education and role of paramedics.  Emergency Care Practitioners were developed by many ambulance trusts to meet the requirements of the services.  The development of the idea of the nurse practitioner in primary care led care led Birmingham and Wolverhampton Universities to begin to train physician assistants.  Nationally there was consultation on the competences these new groups of staff required.

 

Total staff in England  (excluding high street dentists, pharmacists and ophthalmic practitioners)
19961,056,501
19971,058,606
19981,071,562
19991,098,348
20001,118,958
20011,167,166
20011,124,934
20031,283,901
20041,331,857
20051,336,030
20061,338,779
20071,331,109

  above - source NHS Information Centre

on the left - source: BMJ 2004; 328: 729 and Department of Health)

Towards a new model of NHS

NHS logoIn 1999 Frank Dobson told the NHS to adopt a single Logo to imply focus and a consistency of service.  It was soon hard to remember the days when this did not greet one daily.  Yet the nature of the NHS was about to change radically.

In each decade there are central concepts affecting the organisational pattern of the NHS.  In the seventies there was consensus management.  In the eighties the general management function.  Now, spurred by scandals in the financial sector and industry, good governance became a guiding principle. In 1992 the Cadbury Report had identified principles of good governance in organisations - integrity, openness and accountability.  This was taken further in the Nolan Report (1997).  These principles were absorbed into NHS management.  Trusts would be monitored and assessed on their conformity to them.

New initiatives and new policies altered the NHS substantially, as health advisors in No 10 and economists and operational research staff in the Department of Health played a substantial role in shaping policies.  Increasingly the NHS was seen as a concept - tax funded, largely free at the point of use, but provided by a variety of organisations.  No longer was it a service where provision was in the public sector, in facilities that it owned.  The service moved from a system in which providers took no risk and patients just waited until they were treated, to one where the search for efficiency spurred a new series of incentives.  To professionalism, peer review, central direction, performance reporting and accountability were added competition, commissioning (including practice based commissioning), trusts, patient choice, and payment by results.. Dixon J. Editorial, BMJ 2008,336; 844-5.   Some policies (trusts and payment by results) had at least some effect for the good.  Others (e.g. practice based commissioning) were less certain in their effects.

There was bipartisan support for many policies such as NICE, an independent quality inspectorate (the Healthcare Commission), a purchaser/provider split, foundation trusts, concentration on long term illnesses, patient choice, involving primary care in commissioning, a tariff system to pay providers and a more personal service. Some stability could be expected, irrespective of the party in government.

The NHS now provided care largely free at the time of delivery, funded from central taxation, and gained access by

Each of route of access might lead into the local system.  The local hospital might be

In addition, more specialised services would be based on other specialised hospitals that could provide skills and experience that was not normally available

Labour, as had the Conservatives before them, looked at what could be learned from managed care organisations in the USA, such as Kaiser Permanente. The NHS took notice. Characteristics of Kaiser included integration of funding with provision of service, integration of inpatient care with outpatient care and prevention, focus on minimizing hospital stays by emphasizing prevention, early and swift interventions based on agreed protocols, and highly coordinated services outside the hospital, teaching patients how to care for themselves, emphasis on skilled nursing, and the patients' ability to leave for another system if care is unsatisfactory.  Kaiser did NOT have a purchaser/provider split.

The private sector and the NHS.

While Frank Dobson, the first of the Labour Secretaries of State, was firmly opposed to the private sector, through the decade it played an increasing role in the NHS. As the NHS moved from a services provider to a commissioning led organisation. (See speech by Patricia Hewitt, 19 September 2006), the opportunities grew. The increasing involvement was opposed by substantial parts of the Labour Party, unions, NHS management, and the medical profession, but more and more functions were affected. Payment by results (PbB), foundation trust hospitals, independent sector treatment hospitals and private sector providers opened a more sophisticated and aggressive form of the internal market than the Conservatives had tried in the 1990s. Before 2000 the NHS used the private sector largely as a pressure release valve, particularly at the end of a financial year and often at high cost to handle an immediate problem.  Now the private sector was becoming integral to all segments of the NHS.

Private patients

The UK spends less than almost any other Western country on private health care, although about 15% of its total health spending involved the private sector. The number of those in the UK with private medical insurance had remained static for several years but increased again in 1998 to 3.5 million and in 2000 to 5 million, about 12.6% of the population when those with cover through their employers were included, but subsequently started to fall.  More were insured in the south than the north, and the growth in the numbers was even larger among those paying for private treatment out of their own pocket, sometimes on fixed cost 'pay-as you go' packages provided by private hospitals.  Some 13 million people appeared to use the private sector.  Cataract removal for £2000, knee replacement for £7,000 or a heart bypass for £10,000 might be a practical proposition.  Major providers of private facilities included BMI Healthcare, BUPA and the Nuffield Hospitals.  About 850,000 operations a year were carried out in the private sector, in some 200 hospitals, two-thirds of the beds being owned by major groups. As the private sector became more involved in the provision of NHS services, there was a fall in the number of people prepared to pay out of their own pocket for private care.

Ethics and Patient participation

Ethical problems abounded, particularly in the fields of genetic medicine and in vitro fertilisation. In 2008 Parliament considered  the possibilities now opening, for example in the creation of 'rescue babies' whose stem cells could help a sibling.  People increasingly wished to be consulted on their care, and could turn to Internet.  The GMC sent doctors advice on the importance of consent and the ethical problems that might arise.  The Council stated in 2008 that doctors must be prepared to set aside their religious and other personal beliefs if these compromised the care of patients, instancing face veils worn by a  doctor if that was an obstacle to communication and trust, abortion or cremation.

Attempts were made to develop general ethical principals, for example, those of the Tavistock Group.

The Tavistock principles

Rights -  People have a right to health and health care

Balance - Care of individual patients is central, but the health of populations is also our concern

Comprehensiveness - In addition to treating illness, we have an obligation to ease suffering, minimise disability, prevent disease, and promote health

Cooperation - Health care succeeds only if we cooperate with those we serve, each other, and those in other sectors

Improvement - Improving health care is a serious and continuing responsibility

Safety - Do no harm

Openness - Being open, honest, and trustworthy is vital in health care

BMJ 2001;323:616-620

In a consumer society people expected more and Labour attempted to increase people's participation in their individual care and in the management of the NHS.  Community Health Councils were replaced by a Commission for Patient and Public Involvement in Health in 2003 and this was scheduled for abolition in 2008 to be replaced by a new system, LINKs.  The encouragement to join foundation trusts as members was a further approach.

Medicine and the media

The media covered health issues extensively

  1. Thoughtful examinations of the NHS when compared to alternative systems of health care e.g.  Panorama on 26 March and 3 June, before the election of June 2001.

  2. Health care as a whole;  e.g. the Sunday Times regularly featured alternative medicine, dealing with everything from allergy to cancer. Within the professions, where evidence-based medicine was in vogue, it was recognised that much information was spurious junk medical advice. 

  3. Scandals in which patients had received poor care, from individuals or from a health system more generally. Criticism of incompetent doctors, of difficulties in gaining access to health care, the restricted availability of expensive drugs and clinical procedures, and the funding of the NHS as a system, was continuous.

Internet

The rapid spread of the Internet during the decade affected health care in many ways.  By providing people with information it became a powerful way of creating a patient-led health system. Those with serious illnesses such as cancer used the Internet as a source of information.  Typically they used a search engine to check a number of sites dealing with their specific many of the sites, they were not entirely altruistic. Some sought to improve the image of an institution, others had concerns, often finding networks of patients with their own problem. As the private sector had created a marketing orientation.  Some had an axe to grind or were off the wall. By 1998, 6 million in the UK had access to the web at home or at work and numbers rapidly grew, as did the proportion with broadband access.  While there might be much rubbish on the net, that was true of most other forms of publication and users were generally discriminating.  People might make direct contact with doctors via health web sites (c.f. www.drgreene.com).  By 2006 W 2.0 was developing, social software with public participation.  Blogs, YouTube and their compatriots were increasingly used as patients and doctors sought new methods of information discovery.  The amount of clinical knowledge on the web was so vast that doctors, faced by a difficult diagnosis and an unaccustomed group of symptoms, might find useful suggestions by using Google.

Health organisations such as the Mayo Clinic and Kaiser Permanente were early as in the field.  So was the US Government.  The UK government’s attitude was initially cautious, and health web pages in the UK were  seen more as a problem than an opportunity.  By 2000, however, the NHS, the Department of Health and the British Medical Association had effective sites and increasingly used them to publish their documents and reports.  Every significant body now had a web presence; sometimes the only way to find out about the role of the many new organisations in health care was to look at their web site.

Education also benefited. A National Electronic Health Library was developed as a resource primarily for professionals, to be followed by the National Library for Health.  In 1998 the BMJ became an open access journal, making  the full text of original research articles (along with everything else) freely available on the BMJ's website, though some restrictions were later introduced.  In 2003 the BMJ Publishing Group provided access to the evidence-based summaries available in Clinical  Evidence and in 2004 NHS Direct linked to this material. Journals increasingly offered on-line editions, sometimes free, and Stanford University's Hire-Wire Press hosted several hundred electronic versions of scientific journals and provided a search system. U.S. National Library of Medicine's free digital archive of biomedical and life sciences journal literature (PubMed Central (PMC)) aimed to digitise a complete archive of medical journals, including the BMJ, some going back more than 125 years.  On-line leaning developed progressively, for example an online course in International Primary Health Care based at University College, London.

Health service information systems

This was the decade in which an effective country wide NHS information system centred on clinical need, was under development. Appropriate technology was at last becoming available.  It was recognised that a complex and inefficient paper based system, attempting to share clinical information between organisations and their medical staff, would slow the improvement of the service.  The assessment of the quality of care, and contracts that required information about who had done what for whom, increased the importance of IT.  Finally, new services such as pharmacist prescribing and walk-in centres made a coherent IT system essential. An NHS Information Authority was established to manage the development of national health information systems.  It oversaw the introduction of the NHS number, new numbers for babies, payments for GPs and national screening programmes.  It was later phased out to be replaced by the NHS Connecting for Health and the Health and Social Care Information Centre (2005).

The quality of health service information, particularly patient activity information, had long been a source of concern.  From the earliest days of the NHS financial allocations depended upon its accuracy. The introduction of Hospital Activity Analysis in the 1960s and the work under the chairmanship of Edith  Körner in the 1980s were early examples of attempts to improve matters. Yet in 2002 the Audit Commission still found grounds for concern in its report Data Remember: Improving the quality of patient-based information in the NHS.  

Labour inherited a strategy for NHS IT dating back to 1992 which had taken some fundamental steps, for example a unique identity number in a standard format for every patient, and a NHS-wide data network.  However the problems that had been experienced, general practice computing being a notable exception,  reduced support for the programme.  In 1998 a white paper,  Information for Health, created new momentum and shifted the emphasis to the clinical from the administrative.  It committed the NHS to provide life-long electronic health records for everyone with round-the-clock, on-line access to patient records and information about best clinical practice for all NHS clinicians.  Computerised medical records and prescriptions, electronic referrals and hospital test results, and arrangements with community support would all become quicker and more reliable.  Using NHSnet every GPs would be connected by 2000, but though the principles were agreed to be sound, targets were missed.

A new impetus followed a  seminar in Downing Street in February 2002 attended by industry representatives, and the Wanless Report in April 2002 which criticised NHS IT as piecemeal and poorly integrated. In July 2002   Delivering 21st century IT support for the NHS was published. An unprecedented investment in IT began, which would cost some £18 billion over ten years (though early estimates were far smaller).  It was the world's largest and most ambitious health programme, creating comprehensive electronic health records compiled at the point of care, and to be made available to users in primary, secondary, tertiary and community care.

The programme's details emerged in the summer of 2002 and a National Director was appointed in October that year, Richard Granger.  Procurements stressed speed, competition and payment to contractors only if they delivered working systems. In April 2005 the programme was renamed NHS Connecting for Health. The programme was handled in a top down fashion to overcome the previous piece-meal approach. The service was organized in two parts, a national spine and five local service providers that aggregated the health service into five regional clusters. In 2004 BT was awarded the contract to provide the national infrastructure (National Application Service Providers [NASPs] ), as well as the contract to be one of four Local Service Providers (LSPs) responsible for local level services.  Three other firms won contracts to provide services in four other areas. (see map below).  LSPs were responsible for IT systems and services used locally, such as GP and trust systems. They would also make sure local applications could ‘talk to' and share information with the national systems. The programme would connect 30,000 GPs and 270 acute, community and mental health trusts.

National Application Service Provider contracts were awarded to BT for the NHS Care Records Service, Atos Origin (formerly SchlumbergerSema) for Choose and Book (The Electronic Booking Service), BT for N3 (the New National Network). BT would act as a system integrator, and BT Syntegra for new software to manage information and payments under the Quality and Outcomes Framework.  The system would involve

  • NHS Care Records containing basic patient information and health details. Eventually people would be able to access their record and all their health information, and be more involved in making decisions about their own care and treatment.  GPs were anxious because the main system in use in their surgeries was not adopted by the new national groupings. This application fell grossly behind schedule and the Parliamentary Health Committee enquired into the electronic patient record (February 2007).  GP2GP increasingly allowed electronic health system records to be transferred from one practice to another.  NHSmail allowed secure transmission within the NHS.

  • Electronic prescription service - to enable prescriptions to be generated, transmitted, dispensed and sent for reimbursement.

  • Picture archiving and communications system (PACS) - an unexpected and rapid success that allowed x-rays and scans to be stored and transmitted electronically, the national roll out being completed in December 2007

  • The National Electronic Library for Health, later the NHS Library for Health, designed with the NHS employee, doctor or nurse in mind.  Access to the private NHS Intranet (NHSnet) or registration is necessary to use the full facilities, but substantial sections of the library (and its links) have public access.     The public and patients were asked to use NHS Direct.  

 

Richard Granger left the programme in 2007.  By that time the NHS spine was in place, ensuring that basic data, name, address and NHS number, were correctly recorded.  The summary medical record and its transmission between providers remained a far off dream.  Electronic appointment booking was, however, making progress, though electronic prescriptions were slow to come on stream. The Department established a review to establish the problems and found failures right at the top, no one seemed to "own" the big picture on information, there was no system to translate policy into business requirements, and a shifting of responsibility for IT around the Department.

By 2006 the programme was behind schedule, sometimes by years.  Many hospitals had to upgrade ageing systems as the long term solution was not in sight.  GPs were given permission to continue to choose one of a wide range of existing systems, rather than being forced onto a national standard that was not available.  Contracted suppliers were facing facing major losses and in September 2006 Accenture gave up a £1.9 billion contract, passing it to CSC amid fears of further delays. In parallel public anxiety about the security of personal information was increased by a series of security breaches, including the loss in 2007 by government of 25 million personal records relating to child benefit. In 2008 Fujitsu withdrew from the contract from the south of England.

Computerisation

In general practice, the cooperation of the BMA and the RCGP that worked together with government to introduce financial incentives had led almost all to use computers in their consulting rooms for prescribing and other clinical purposes. By 1996, 96% of general practices were computerised and about 15% now ran "paperless" consultations. In hospitals computing was treated as a management overhead, and doctors had few incentives to become involved.  There are several reasons why it was technically easier to computerize general practices than large hospitals, and all are related to scalability. What works for a small practice does not work for a big hospital or across the primary-secondary care divide. For twenty or more years GPs had used PCs; hospitals needed larger machines. The sheer size of the hospital sector and the way in which technological advance rapidly outpaced information technology in the NHS, led to substantial difficulties.  The structure of patient records differs substantially from specialty to specialty, terminology, varying computer standards, security and rapid technological advance all make for problems. (Benson T, BMJ 2002: 325,1066-9 &1090-93)  Conventional email  easily outpaced developments in the NHS intranet that might be more secure, but was less easy to use.  By 2003 doctors, both in hospital and general practice, were taking to hand-held computers and using their personal digital assistants for similar activities - personal and professional scheduling and, at the point of care, for information access and support for clinical decision making. PDAs were being used to access  drug information and clinical decision support systems, prescribing, medical records and laboratory results.  Wireless connection was also being used.

Examples of common uses of handheld computers

Source  McAlearney A S et al., BMJ 2004: 328: 1162-5

NHS Numbers

In 1995/6 a new NHS number was issued to all patients on GPs' lists.  These numbers formed a database on which, ultimately, electronic patient medical records might be developed.  However the data base was soon used for a  National Strategic Tracing Service (NSTS) to provide the NHS with accurate patient administrative data.  Pilot trials showed that the data base was useful in waiting list management.  Based on a secure database of all people born, or who had been registered with a GP in England and Wales, by 2001 it provided on-line access to over 60 million records covering all GP registered patients.  It included:


Medical progress

 Paragraphs include

Acute and chronic disases

The drug treatment of disease

Public Health, immunisation and infectious disease

Alternative medicine

Emergency medicine

Medical genetics

Radiology and diagnostic imaging

Surgery

Orthopaedics and trauma

Cardiology and cardiac surgery

Organ Transplantation

Neurology & neurosurgery

Ophthalmology

Cancer

Paediatrics

Obstetrics and Gynaecology

Geriatrics

Mental illness

National Service Frameworks.

For many years government had supported the professions in encouraging good clinical practice; often by establishing a professional sub-group under the Standing Medical Advisory Committee and then commending its recommendations . SMAC and SNMAC were abolished in 2005.  In the seventies both the Conservatives and Labour had issued a range of proposals to improve clinical services, for example Better Services for the Mentally Handicapped (1971). This process was continued with the introduction of national strategies and  National Service Frameworks  (NSFs) which

 "set national standards and defined service models for a specific service or care group, put in place programmes to support implementation and established performance measures against which progress within an agreed timescale will be measured".  

NSFs were issued in September 1999 for mental health and for coronary heart disease in March 2000.  More followed.  As the number grew, they tended to move away from centrally driven targets towards the identification of good practice.  Another approach was the appointment of senior clinicians to central positions of responsibility.  The Chief Medical Officer had previously appointed personal clinical advisers, and the medical staff of the Department of Health had developed close links with them.  But as the Department's Medical Division shrank, Health Directors, or "tsars" were were appointed to drive clinical policies in cancer, heart disease, mental health, older people's services, primary care, children, emergency access and patients' issues. NICE similarly influenced clinical practice. 

Acute Diseases

Advances in the management of serious acute conditions, such as heart disease and stroke, influenced the the hospital service.  If the best treatment for a heart attack was early coronary angioplasty (an approach commonplace in the USA for ten years), patients needed direct admission to a unit capable of performing this.  Similarly, a specialist stroke unit with scanning facilities and clot-busting drugs 24/7 might reduce ultimate dependency.  Such units could not be provided in every DGH - they might need a base population of a million, making a case for major regional units equal to the challenge.  Reconfiguration of hospital services along these lines was given impetus by the reports from Prof. Lord Darzi of Imperial College Medical School, and the National Advisor on Surgery.  His report on the future of planned surgery, 'Saws and Scalpels to Lasers and Robots - Advances in Surgery', said that 80% of all surgery should be done locally with the remaining 20% of the more complex cases taking place at specialist centres with access to the highly skilled surgeons and the most up to date technology. This might include

Darzi outlined changes over the previous two decades which had led to a revolution in surgery, with the use of lasers and keyhole surgery leading to a quicker recovery for patients and less risk of infection.

Chronic Diseases

Increasingly health services were concerned with chronic diseases. Improving their management and the many admissions for which such diseases were responsible, became a high priority for government and led to an examination of the methods adopted by US managed care organisations. Many medical routines developed to handle acute illnesses were ill suited to chronic disease management.  Two new approaches were introduced, disease management and the chronic care model.

Disease management was provided by large companies unrelated to doctors' practices, paid by health insurers.  They use sophisticated information systems to identify patients with chronic diseases, and establish close communication with them, educating them and their families on self-care, track their progress and intervene if problems seek likely to arise.  The chronic care model, in contrast, is based within the doctors' practices, reorganised to create informed patients with self-management skills, and developing multidisciplinary teams to monitor patients at risk. (Casalino JAMA.2005; 293: 485-488.)

The pharmaceutical industry was interested in diseases requiring long term medication and in the US provided some such care.   In theory systematic, integrated evidence-based and long-term care of chronic high cost diseases such as asthma, rheumatoid arthritis and diabetes might be more effective. However, the management of specific diseases by a separate organisation risked the fragmentation of care, as patients with multiple unrelated pathology might be directed to specialised units. 

Evaluation studies were mounted in the USA and pilot projects were established, advised by the US based Evercare, in the hope that surveillance might reduce admission. Doctors and managers might agree goals, identify high risk patients, and establish intensive nurse led outreach.  Financial incentives might be introduced, for example to encourage joint working by hospital specialists and primary care. Early pilots did not, however, suggest that intensive case management of the vulnerable elderly would reduce emergency admissions substantially.

The drug treatment of disease

The health service was affected by an increasing number of expensive but clinically effective drugs sometimes "life-style" in nature.  Prozac, HRT and Viagra were examples of pharmaceutical advance that might improve qualities of life to which medicine had previously paid less attention.  In January 2001 NICE approved three new drugs for the treatment of mild or moderate Alzheimer's disease.  A new anti-obesity drug, Xenical, offered an alternative approach to a common problem by reducing fat absorption; NICE agreed in March 2001 that it could be prescribed under the NHS when patients were motivated to lose weight, obesity was significant and was posing a threat to health. In April 2002 NICE recommended the use of bupropion (Zyban) and nicotine replacement therapy (NRT) for smokers who wished to quit.

Expensive yet effective drugs appeared for common conditions, e.g. for cancer and for coronary artery disease and stroke. Statins represented the largest drug cost to the NHS (£1.1 billion in 2004) though the cost of simvastatin fell greatly when out of patent.  Herceptin achieved a major reduction in the recurrence rate of an aggressive form of breast cancer in those with the HER-2 gene - but cost £20,000/year. Adults with diabetes of the insulin resistant type stood to benefit from a new class of drugs, the thiazolidinediones.  Organ transplantation became more reliable with the development of new immune-suppressers. New drugs were available for schizophrenia, which had been adopted rapidly in North America and Scandinavia. The treatment of benign prostatic hyperplasia, a common condition, was improved by combination therapy with doxazosin and finasteride which reduced the risk of acute urinary retention and the need for surgery. 

Drug safety

The examination of drugs for safety and efficacy in the UK had a long history, back to the thalidomide disaster in the 1960s. Within the European context the European Medicines Evaluation Agency was established to bring together the resources of Community members and was based in London.  In April 2003 the Medicines Control Agency (MCA) was merged with the Medical Devices Agency (MDA)  as the Medicines and Healthcare Products Regulatory Agency, (MHRA)  In the USA the FDA occupied a similar role.

Not all the new drugs proved safe either before or after public release.  Unexpected problems emerged. In 2006 at the clinical trial stage, the testing of a monoclonal antibody TGN1412 led to multi-organ failure simultaneously in 6 young men; all survived but some suffered permanent injury.  Reporting systems made it possible to spot increased numbers of rare events, such as liver failure. However a raised incidence of a common problem, for example heart attacks, was harder to discover. A new anti-depressive, Paroxetine (Seroxat) seemed to be associated with a raised incidence of suicidal thoughts and suicide. Cox-2 inhibitors were introduced  in 1999 for the the treatment of arthritis in the hope that gastro-intestinal side effects would be less common.  They received massive publicity, often direct to consumer, and combined sales exceeded $5 billion annually. Over a 5 year period, evidence emerged of higher risk of heart attacks and stroke and appeared to be an effect of all drugs in that class. In September 2004 Merck withdrew rofecoxib (Vioxx ) from the market.  The belief that the Company had not drawn attention to early indications of problems led to Court actions and substantial awards against Merck.  Pfizer also withdrew Celebrex (celecoxib), there being well established alternatives for the treatment of all the approved indications for their use. (Drazen J M, NEJM 17 March 2005)

Off-label prescribing

The prescription of a medication in a manner different from that approved, was legal and common, often in the absence of adequate supporting data. Off-label uses had not been formally evaluated and evidence provided for one clinical situation might not apply to others. It usually entailed the use for unapproved clinical indications or in unapproved subpopulations (e.g., paroxetine [Paxil] for depression in children). It originated from a presumed drug class effect, extension to milder forms of an approved indication, extension to related conditions or extension to conditions whose symptoms overlap with those of an approved indication.  Though such use might be substantial, it was often not supported by strong evidence. There are conflicts, for payers question the need to pay for products that are not proven while physicians desired the autonomy to prescribe drugs for individuals regardless of the state of approval.  The pharmaceutical industry seeks to enlarge its markets to ensure future profits and sustain drug development. The public wants drugs that are safe, evidence-based, and affordable; but also want the newest therapies.



Ask your doctor about
.....

Many patients consulted their doctors about hearing of drugs on TV or in the papers.  Europe differed from the USA in is approach to Direct to consumer advertising of prescription drugs (DTCA) for governments inevitably wished to control drugs budgets.   In 1997 the US Food and Drug Administration (FDA) further relaxed the controls.  DTCA was a powerful tool, designed to create demand and maximise profits by encouraging patient demand. Bob Dole, the former US vice-president appeared in the US on a TV commercial for erectile dysfunction - paid for by Pfizer. Some drugs had become household names, Viagra, Prozac for depression, Claritin for allergies, Rogaine for baldness and Matrix for migraine.  DTCA was often inaccurate; from 1997 to 2001, the FDA in the USA issued 94 notices of violations, mostly because benefits of the drug were hyped and risks minimised.   In 1999 drug companies began ‘public awareness campaigns’ in England. These had little to do with health education, for the material and the advertisements were not about inexpensive diuretics, immunisation or cervical smears, but unsightly rashes and cures for baldness. In 2001 the European Commission proposed changes in EU law to allow DTCA for AIDS/HIV, diabetes, and asthma for a 5-year period, a proposal was categorically rejected by MEPs the following year. New Zealand reviewed DTA and concluded that the benefits did not outweigh the harms; similar views were held in Canada and Australia.  Internet increased pressure on doctors to prescribe the drugs publicised. The drug industry regarded Internet as part of their DTCA campaign aimed at people actively searching for information. 

Increasingly drugs were cleared for over the counter (OTC) sale by a pharmacist, as was simvastatin 2004. Little time was lost in advertising it to the public once it ceased to be a prescription drug. Candidates for OTC were usually drugs for non-chronic conditions that patients could easily self-diagnose with a low potential for harm from widespread availability.  Three factors motivated OTC, the patient self-help movement, the desire to minimise costs to the public purse, and the belief by the company that this was profitable.

Public Health

Immunsation

Infectious disease

Factors affecting premature death.

Health is influenced by  genetics, social circumstances, environmental exposures, behavioural patterns, and health care.  Medical care has a relatively minor role in reducing early deaths when excellent medical care can prevent only a small fraction of deaths. The single greatest opportunity to improve health and reduce premature deaths lies in personal behaviour. Obesity and physical inactivity combined are the top two behavioural causes of premature death.  We Can Do Better — Improving the Health of the American People, Steven A. Schroeder, NEJM 2007, 357; 1221-1228   It was here, and on smoking, that effort was concentrated.

Department of Health Economists had difficulty in assessing the balance between spending on health promotion and health care services.  There was some resistance to rigorous application of cost-effectiveness frameworks to favoured interventions.  Nevertheless a range of preventive programs that seemed cost effective included universal 'flu vaccination for the over 65s, statin therapy to middle-aged people with coronary heart disease or who were at high risk, screening for Chlamydia infection, nicotine replacement for smokers wishing to stop, and increased support for counselling smokers.

Public Health

The wish to reduce "health inequalities" was always high on Labour's list of priorities. A mind-numbing series of reports appeared.  They were lengthy, repetitive and because of the compromises necessary to avoid trenching on private liberty, were more radical than some wished, and less prescriptive than others would have them.

The Acheson Inquiry (1998)
Saving Lives - our healthier nation (1999)
Tackling Health Inequalities - A programme for action (2003)
Wanless - Securing Good Health for the Whole Population (2004)
Choosing Health (2004)
Health Inequalities; progress and next steps.

Acheson Inquiry

Labour commissioned an inquiry into inequalities in health in 1997, conducted by Sir Donald Acheson, an unusual choice as he had been CMO at the time when The Health of the Nation was prepared under the previous administration. The inquiry team, composed of scientists but no economist, based their recommendations on published evidence.  Because of evidence that the poor generally lived shorter unhealthy lives, the key recommendations involved a wholesale redistribution of wealth. The difference between the mortality rates of Social classes IV and I for stroke, heart disease, accidents and suicide were, if anything, widening.  Unlike the recommendations of the Black Report (1980), Acheson’s 1998 wide ranging recommendations were not costed.  Sir Donald wanted to see the package implemented as a whole. ‘The inquiry had not looked at cost effectiveness’, he said, ‘affordability is not a matter for scientists but politicians…’  Some recommendations were vague, for example the need to take ‘measures to prevent suicide among young people’ or ‘policies to reduce fear of crime and violence’.  Sir Donald had asked an evaluation group to look at the quality of the evidence it used to reach its conclusions, and support its recommendations. For most of these there proved to be no high quality controlled studies showing that the recommendations  would improve health - there were few randomised-controlled trials available – but hard evidence of effectiveness has seldom underpinned changes in health policy.  Indeed the widely held view that the extent of inequality of income in a society correlated with the health of the population was undermined by more recent studies, for at least in the US education was a powerful predictor of mortality, far more than income inequality (BMJ 2002;324: 1-2)

Saving Lives - our healthier nation

This was a review of 1992 Health of the Nation initiative that found that its strategy had failed to change spending priorities and had made no significant impact on health authorities, trusts or GPs.  In 1999 Labour published a revised programme as a Green Paper, Our Healthier Nation, then a White Paper, Saving Lives - our healthier nation. This aimed to improve the health of everyone, particularly the worst off, taking into account the social, economic and environmental factors affecting health.  It reduced the number of health improvement targets to four and re-iterated the contributions to health both of social, economic and environmental factors, and the individual decisions taken by individuals and their families.  The document expressed aspirations, and tended to say what government could do - and not what it would do.  The role of the Health Visitors would be strengthened, and educational programmes would be introduced, for examine sessions at school to help children to avoid accidents. The new policy was not substantially different from the old one, though  the goal was now to improve the health of the worst off in particular.

Tackling Health Inequalities

In July 2003 Tackling Health Inequalities - A Programme for Action  set  out a three-year plan on health inequalities. It aimed to meet the 2010 national health inequalities target on life expectancy (by geographical area) and infant mortality (by social class) and was organised around four themes, supporting families, mothers and children to break the inter-generational cycle of health, engaging communities and individuals, to ensure relevance, responsiveness and sustainability, preventing illness and providing effective treatment and care and dealing with the long term underlying causes of health inequalities.

Wanless

In his first report to the Treasury, largely concerned with financial matters, Derek Wanless had provided 3 different scenarios based on different levels of involvement of the public in relation to their health. Economic analysts within the Department of Health had a substantial input to these scenarios.  In April 2003 he was asked to provide an update on the challenges involved, focusing on prevention and the wider determinants of health. Two issues emerged again, regulation versus patient education, and local versus national projects. He issued a report on population health trends in December 2003 and his final document, Securing Good Health for the Whole Population, appeared in February 2004.  It provided little assistance in policy making, while criticizing policy, service frameworks and targets in smoking and obesity. Wanless thought the costs of the health service would be massively less if  there was "full engagement" - i.e. energetic and effective action by all concerned, including individual members of the population.  Wanless drew attention to the problems of smoking, lack of activity and obesity, while failing to make clear what the costs would be incurred if individuals avoided life-style induced illnesses, and died later of something else instead.  
Report summary -  and recommendations

Key points included

That led to a consultation document and a further White Paper.  Increasingly the role of the individual was emphasized in the making of healthy lifestyle choices.

Choosing Health

Published in November 2004, the principles were informed choice (with the protection of those too young to choose, and ways of ensuring that one person's choice did not harm others), tailoring proposals to the reality of individual lives, and working together.  Among a myriad of actions to make the NHS a health promoting organisation, Choosing Health proposed

There would be a ban on smoking in most public places such as pubs and restaurants, and in February 2006 the House of Commons on a free vote went further, for a near total prohibition.  There would be restriction of  TV advertising before 9 p.m. of high calorie junk foods and provision within primary care health of education on lifestyle.  The plan was criticized because of many of the proposals were already being pursued - there was little new about patient education -  the timescales were long and reliance was sometimes placed on self-regulation by industry.  PCTs in the more deprived areas would, however, receive extra money to pilot such initiatives as health trainers, local people advising others on healthy living.  But the financial crisis of the NHS in 2006 led many PCTs to use money intended for Choosing Health to reduce the deficits that government said was their highest priority, and in his annual report for 2005 the CMO regretted the low priority given to spending on public health services, compared with clinical ones.

Health Inequalities; progress and the next steps.

Attending the launch of Health Inequalities; progress and next steps (June 2008) the Secretary of State supported by Sir Michael Marmott made clear his commitment to long terms plans or addressing inequalities, seeing it as a central issue for the Department of Health.  He described the drop in life expectancy by one year at every tube station going east on the Jubilee line from Westminster to Canning Town.  A Public Service Agreement (PSA) was set out to reduce by 2010 inequalities in health outcomes by 10% for infant mortality and life expectancy at birth, and to reduce the gaps between manual and other social groups.  While the health of the poorest had improved significantly, the health gap remained.

The Health Development Agency

The Health Development Agency was a special health authority, the successor to the Health Education Council (1969-1987) and the Health Education Authority (1987-2000), established in 2000 to develop the evidence base to improve health and reduce health inequalities. It worked in partnership with professionals and practitioners across a range of sectors to translate that evidence into practice   It had a staff of approximately 120 and an annual budget of £10 million. As a result of the Department of Health's 2004 review of its "arms length bodies", the functions of the HDA were transferred to NICE on 1 April 2005.

Government increasingly realised that the problems with obesity, alcohol abuse and smoking were more about lifestyle than public health.  In many cases government was not able to persuade people to change personal behaviour.  Speaking in Nottingham on Public Health on 26th July 2006, the Prime Minister, Tony Blair, said that the role of government was to enable and help people to act with responsibility.  Referring to the problem of obesity, smoking levels, drinking habits and diabetes, the he pointed out that "these individual actions lead to collective costs."

Organisation of public health

The changes in the organisational structure of the NHS created problems for public health, as the organisations seldom matched local authority boundaries. Until 2001 most worked in Health Authorities – the “purchaser” or “commissioner” side.  Some worked as epidemiologists in hospital trusts.  Each Authority had a Director of Public Health sometimes with other roles such as Director of Health Strategy and usually with support from other consultants and trainees. 

As regions were abolished and regional outposts were integrated into the Department of Health, Regional Directors of Public Health became civil servants with all that that entails.  "Observatories" were created was to report on the problems at regional level by the analysis of statistical data.  In parallel non-medical staff concerned with public health, e.g. health visitors, health educators and environmental officers, became eligible for membership of the Faculty of Public Health Medicine and the government decided that the post of Director of Public Health did not require a medical qualification. 

April 2002 completed the move to Primary Care Trusts, exacerbating the problems of public health as a discipline.  Primary Care Trusts were essentially built upon general practitioner registered populations rather than a defined geographical area, and the large number of PCTs each of comparatively small size, posed problems for public health.  Later, an attempt was made to align many PCTs with local authority boundaries. Expectations of what public health should be doing  also included activities the scientific bases of which were uncertain. 

9 Regional Public Health Groups were ultimately formed to match the strategic health authorities and were part of the Department of Health, co-located in each of England’s nine Government Offices.  They worked alongside public health colleagues in NHS, local authorities and other agencies to improve and protect their local population.   The Association of Pubic Health Observatories drew together public health intelligence from across the UK and Eire.  Established on the basis of the regional groups, it provided the NHS with expertise in fields such as alcohol and drug misuse, and diseases such as strike, cancer and sexual health.  It produced health profiles for every local authority in England.  Public health was itself changing, as it progressively ceased to be largely a discipline for doctors who had received the additional training necessary, and came to